Publications ‑ Books, Podcasts, etc.
Rethinking Rural Health Ethics, 2017
The first book to critique the existing urban-centric understanding of health ethics."
Authors: Christy Simpson & Fiona McDonald
This book challenges readers to rethink rural health ethics. Traditional approaches to health ethics are often urban-centric, making implicit assumptions about how values and norms apply in health care practice, and as such may fail to take into account the complexity, depth, richness, and diversity of the rural context. There are ethically relevant differences between rural health practice and rural health services delivery and urban practice and delivery that go beyond the stereotypes associated with rural life and rural health services. This book examines key values in the rural context that have not been fully explored or taken into account when we examine health ethics issues, including the values of community and place, and a need to “revalue” relationships. It also advocates for a greater attention to meso and macro level analysis in rural health ethics as being critical to ethical analysis of rural health care. This book is essential reading for those involved in health ethics, rural health policy and governance, and for rural health providers.
Christy Simpson was one of the speakers on this panel.
Health Advocacy, Inc. How Pharmaceutical Funding Changed the Breast Cancer Movement, 2017
"Sharon Batt, herself a breast cancer survivor, weaves the personal with the political to tell the story of how most of the breast cancer movement ended up in the arms of the pharmaceutical industry. Abandoned by the federal government as it increasingly adopted a set of neoliberal values, the patient breast cancer groups turned to the drug companies for funding, and in doing so lost their way." – Joel Lexchin, MD, Professor Emeritus, Faculty of Health, York University and author of Doctors in Denial: Why Big Pharma and the Canadian Medical Profession Are Too Close for Comfort
Author: Sharon Batt
Today, most patient groups in Canada are funded by the pharmaceutical industry, raising an important ethical question: do alliances between patient organizations and corporate sponsors ultimately lead to policies that are counter to the public interest? In this examination of Canada's breast cancer movement from 1990 to 2010, health activist, scholar, and cancer survivor Sharon Batt investigates the relationship between patient advocacy groups and the pharmaceutical industry – and the hidden implications of pharma funding for health policy.
Health Advocacy, Inc. dissects the alliances between the companies that sell pharmaceuticals and the individuals who use them, drawing links between neoliberalism and corporate financing and the ensuing threat to the public health care system. Batt combines archival analysis, interviews with advocacy and industry representatives, and personal observation to reveal how a reduction in state funding drove patient groups to form partnerships with the private sector. The resulting power imbalance continues to challenge the groups' ability to put patients' interests ahead of those of the industry.
Batt's conclusion is unsettling: a once-vibrant movement that encouraged democratic participation in the development of health policy now eerily echoes the demands of the pharmaceutical industry. This thorough account of the shift from grassroots advocacy to Big Pharma partnership defines the struggles and stakes of activism in public health today.
Rediscovering the Art of Dying
Author: Nuala Kenny
Drawing on the Passion of Christ, Sr. Nuala Kenny reflects on the inevitable questions we all face regarding health, illness, suffering, and dying. Sr. Nuala Kenny provides a profound spiritual and biblical reflection by linking Jesus’s own experience of suffering and death with real-life stories about patients.
This book is for anyone undergoing, or reflecting on illness, suffering, and dying. It is also for families and friends who accompany the sick, dependent and dying, and for caregivers who accompany them. It is sure to guide attitudes, practical decisions, and actions that are central concerns in serious illness and dying, while clearing up misunderstandings that often accompany periods of stress.
Sr. Nuala P. Kenny is a Sister of Charity as well as medical doctor, O.C., M.D., F.R.C.P. Shortly after receiving her MD from Dalhousie University, she became a Fellow of the Royal College of Physicians and Surgeons of Canada, and was certified by the American Board of Paediatrics. Among her many accolades, she was appointed an Officer of the Order of Canada for her contributions to child health and medical education and has received a Queen’s Jubilee Medal. She is author of hundreds of papers and two books: among them, What Good is Health Care? Reflections on the Canadian Experience (2002) and Healing the Church, by Novalis (2012)