Study Participation

Lend us your time

Research isn’t possible without generous contributions of time and effort from families who want to help us better understand autism spectrum disorder (ASD) and how to improve quality of life for individuals with ASD and their families.

Several IWK services for children and youth with ASD have been developed or implemented as a result of work led by the Autism Research Centre; for example, the Early Intensive Behavioural Intervention program and the "Facing Your Fears" anxiety treatment program.

For some research studies, families can participate by agreeing to share information gathered as part of their clinical care at the IWK Health Centre. Other studies rely on families who volunteer to visit our lab at the IWK, or to allow us to visit them/their children in their homes or preschools. In some of these studies, our research staff members or students play games with children that measure language, problem solving or other skills. Parents are often asked as part of our studies to complete written questionnaires or answer questions during an interview. Depending on the study, these might be questions about their children, or experiences with or opinions about health services.

Currently recruiting

The following ARC studies are currently recruiting participants:

Attention control and emotional regulation in infant siblings

Recruiting 6- to 12-month-old siblings of children with a diagnosis of ASD, and 6- to12-month-old siblings of children with no family history of ASD. To learn more about participating, please call Stacey at 902-470-7275 or email at stacey.macwilliam@iwk.nshealth.ca

Promouvoir la Réussite Scolaire des Enfants Atteints d’un Trouble du Spectre de l’Autisme (TSA)

Comment cela se passe-t-il pour les familles francophones en situation minoritaire en Nouvelle-Écosse?

Nous recrutons deux groups pour cette étude:

(1)   Les parents d’enfants de la maternelle à la 3e année présentant un diagnostic de TSA et dont la langue parlée à la maison ou la langue ancestrale est le français
(2)   Les éducateurs ayant de l’expérience avec des enfants de la maternelle à la 3e année présentant un diagnostic de TSA et dont la langue parlée à la maison est le français

  • Nous aimerions en savoir plus sur les expériences des familles néo-écossaises d’enfants atteints d’un TSA qui souhaitent exposer leurs enfants au français à la maison ou à l’école.
  • Les parents et éducateurs rempliront un sondage en ligne au sujet de leurs expériences concernant les langues utilisées pour fournir des services de santé et d’éducation aux enfants atteints d’un TSA qui parlent français à la maison.
  • Le sondage est rempli en ligne et peut prendre jusqu’à 40 minutes.
  • Pour vous remercier d’avoir pris le temps de répondre à ce sondage, vous aurez la chance de gagner une carte-cadeau de 50 $ lors d’un tirage au sort.

Pour obtenir davantage d’information, veuillez suivre un de ces liens:

Parents : http://j.mp/2VGROKI

Professionnel dans le système d’éducation de la Nouvelle-Écosse: http://j.mp/2HvU1yz

ou contacter Annie Richard: (902) 470-7275 ou Annie.Richard@iwk.nshealth.ca

Promoting School Success for Children with Autism Spectrum Disorder (ASD)

How do Minority French-Speaking Families Fare in Nova Scotia

Two groups are being recruited for this study:

(1)   Parents of a child in grades Primary to 3 with a diagnosis of ASD who have French as a home or heritage language
(2)   Educators with experience with children in grades Primary to 3 with a diagnosis of ASD who have worked with at least one family of a child with ASD who has French as a home language.

  • We would like to know more about the experiences of Nova Scotian families of children with ASD who are interested in exposing their children to French at home or in school.
  • Parents and educators will fill out an online survey about their experiences with the languages used to deliver health and education services to children with ASD who have French as a home language.
  • The survey is completed online and may take up to 40 minutes.
  • To thank you for your time, you will have the chance to enter a draw for a $50 gift card.

For more information please follow one of the links below:

      Parents:
http://j.mp/2VGROKI

     Professionals
in the Nova Scotia education system: http://j.mp/2HvU1yz

or contact Annie Richard: (902) 470-7275 or Annie.Richard@iwk.nshealth.ca

Reading Comprehension in Children with Autism Spectrum Disorder (ASD): The Relationship between Language and Literacy Development

Recruiting 8-12 year old children with ASD to take part in a study about reading comprehension. To learn more about participating, please call Tamara at 902-470-7275 or email at t.sorensonduncan@dal.ca

Right versus wrong—what makes the difference?

Researchers at the IWK Autism Research Centre are interested in understanding how autistic people think about moral issues. Participants will be asked to complete two questionnaires and a three-part interview about morality. To learn more or get involved, please contact Erin Dempsey, erin.dempsey@dal.ca 


For more information on these studies and all ARC research projects, please visit our Research section

Taking part in a research study and have some questions?

Information and answers to frequently asked questions from the Research Ethics Panel of the Government of Canada